There are so
many stories milling around in my head, waiting to burst out.
Profound
stuff, like musings on Body image and How your life story affects your cancer
story.
Interesting
stuff, like What (not) to say to a cancer
patient and What makes a helpful
doctor/nurse.
Mundane
stuff, like How an errant Softie can make
you look like a Picasso painting and When
should I go back to work?
Backdated
stuff, like How did I find the cancer? and
How did the children react to the news?
But I mustn’t
overload you or keep you from your work/shopping/bedtime. I decided that it’s
time to put first things first. So the next few blogs are going to be about
Owl.
First up: How Owl has helped my children.
Almost as
soon as I had given my newly stitched Owl cancer, I became aware of his huge
potential as my personal therapist. But that wasn’t the original intention.
Owl was
given cancer in order to help my daughters.
You will
need to put this into the context of our family life.
Projecting events, feelings,
emotions and opinions onto a soft toy is nothing new in the Tuffrey household. The
men have excused themselves from this perhaps rather bizarre phenomenon, but I
freely admit that I have entered into it with gusto.
My now 14
year old daughter has Pig, who has joined in with everything for over 13 years.
My 11 year old daughter has Bear, who is 7. He, too, is always there for her.
Bear and Pig
have their own school uniform. They come on holiday with us. They cry at films.
Giving them
a voice may have been my fault, as I used to talk for Pig before my daughter
could speak. As soon as Pig could begin to use her voice, he would only ever speak in Dutch (even though my daughter always spoke to me in English). I think that was because Pig spoke Dutch when he used my voice, so she must have thought he couldn’t speak English.
(He can now.)
I am delighted that Bear and Pig are still going strong even though their owners are now teenagers, and I secretly hope that they will visit me even when my husband and I are in a nursing home for the elderly.
I can highly
recommend giving children a deliberate alter-ego like these two animals.
It has
enabled them to express difficult emotions. It’s much easier for a Bear to say “sorry”
for misdemeanours than it is for a young girl.
When my
older daughter had just started primary school, she came home with the news that she’d
had a horrible lunch. Didn't they have nice things to eat? Well, yes, but she hadn’t dared ask the dinner lady for what she
wanted (so was given a ladle full of yuk).
“Oh dear, that's awful,” I said. “I wonder what
Pig would have done?”
“He would
say very loudly I DON'T WANT THAT, I WANT THIS!” she said.
“Well,” I
suggested, “next time you get given something you don’t like, why don’t you
pretend to be Pig?”
She did, I think. Pig has made her braver.
So over the
years, my daughters have learnt that you can use external aids to understand
and express your feelings. Pig is mostly retired now, but his help has been,
and often still is, invaluable.
It was in
this family context that I decided Owl should mirror my cancer journey.
My children are old enough, of course, to understand what
is happening to me without the help of Owl. It has been unexpectedly useful, however, to put Owl through everything I’ve gone through.
There has
been the MRI scan and the heart test and the hospital admissions. He has shared my trials and tribulations
through bandages, scars and markings.
Owl and I, marked up for the lumpectomy, and with a plaster where a radio-active dye injection had been given (to light up the key lymph node during surgery) |
In fact, Pig has come out of semi-retirement to take on a new incarnation in recent months. He now fancies himself a Cancer Support Nurse to Owl.
As soon as I have to go through something difficult, my older daughter says cheerfully, "Hang on a minute, I must get Pig! Owl needs his Cancer Support Nurse."
(“I don’t know much about cancer. Sorry,” Pig has admitted. “I'm not a very good nurse. I only know how to do support. I can give hugs.”)
In the
same way that it is easier for Bear to say “sorry” than it is for my daughter,
it is much easier for me to say “Owl is feeling sad about losing his wing” than
it is to say “I am feeling sad about losing my breast.”
In fact, Owl made it surprisingly easy to tell my younger daughter that I needed a mastectomy. (For my son and older daughter, grown-up explanations and
discussions were more appropriate).
I was shaky
and upset about this news. I felt very strongly that all three children had
to be told as soon as possible. I spoke to each of them in turn as they came home
from their respective schools.
All I had to
do was put Owl prominently on the kitchen table, and tell my younger daughter
that Owl needed to go back into hospital, because the doctor had discovered
more cancer in his body.
Of course, she knew immediately that this news was really
about her mother. Owl has enabled questions and discussions about this.
My younger
daughter seems utterly reassured by the fact that I have an Owl to keep me
company throughout my treatment. It is quite wonderful to see how through Bear’s care and concern for Owl, she
is able to express her own care and concern for me.
Miraculously, I am now able to help her understand that adults have worries too, without it being
distressing.
I don’t think it would be right for my children to worry that their
mother is anxious or frightened. Somehow, having these emotions
contained in a small fabric owl makes them manageable and acceptable.
I have been
profoundly moved by my younger daughter’s unspoken insight into all of this.
One day,
when I was getting ready to go to a hospital appointment, she reminded me: “Mum,
do you have Owl?”
I had almost
forgotten him, so I went to get him and held him up before putting him into my
handbag, making him quiver.
“Look! Owl
is a bit frightened about going to the hospital. He is worried about what the
doctor is going to say.”
She rushed
over to him, arms outstretched, eyes full of compassion. She took him out of my
hands and kissed him all over.
“Oooohh, don’t
you worry, Owl!” she said. “Your mummy is frightened too. So you are not alone.”
The get-well-card my younger daughter made for me and Owl |
Wonderful things, owls. And bears and pigs, and whatever you find to give a voice to things that are difficult to say or think. I wish we'd had them when my children were small. When we read Northern Lights we all wished we had shape-changing daemons, a manifestation of our animus/anima. Now there are owls to fulfill that delightful function.
ReplyDeleteDear Irene,
ReplyDeleteI read your blog from the beginning, sometimes with difficulty because of language and my poor English. I am deeply sorry for what happened to you and I think a lot about you. A friend of mine, who was a psychologist in palliative care, had this experience to switch the position of caregiver to the patient with cancer and her thoughts about it was interesting and disturbing.
I am moved to read you and I am admirative to your creativity. Olw is a great idea. I have 4 children and our two youngest daughters are the same age and I can well imagine your dialogues.
I leave tomorrow for the Congress in Vienna and I deeply regret not seeing you again. I go with my oldest daughter 20 years, and next work, I hope to enjoy some of the city with it. I especially think of you there and hope you will can travel again soon.
Courage and good recovery
Anne Dusart, Dijon, France
Bonjour Anne! How nice to hear from you. You are, as always, much too modest about your English! I am glad you find my blog interesting.
DeleteI am very sorry that I can't be at the IASSIDD congress in Vienna this week. There are so many friends/colleagues there, from all over Europe. I am grateful that several people have agreed to step in and do the talks I was planning to give. Look out for presentations by David Oliver and Karen Watchman, as well as our excellent poster on the launch of the International Society of Cancer and Intellectual & Developmental Disabilities.
Above all, enjoy Vienna with your daughter!